We are delighted to invite you to our webinar hosted by The International XLH Alliance on October 22, 2020 at 19:30 CEST.

The webinar has been organised to draw attention to the urgent challenges facing adults with XLH by sharing views from patient organisations, clinicians and researchers. We hope to provide information on the unmet needs of adults with XLH, and to give evidence on current and future approaches to treatment and research in adult care. Our stakeholders will also debate ideas to support our call to action to improve the lives of adults with XLH.

Panel and Presentations: Dr. Karl Insogna (USA), Dr. Peter Kamenicky (France), Prof Richard Keen (UK), Pol Harvengt (Belgium), Tenna Toft Sylvest (Denmark), Oliver Gardiner (UK)

Moderator: Elizabeth Olear (USA)

Download the white paper – Unrecognised burden of XLH in adults

Please complete the below form to receive your invitation in the lead up to the event.

The webinar will be hosted and recorded using Microsoft Teams Events.

Registration is now open

Registration is now open


Duration: 1h 30min


  • Elizabeth Olear, MS., MA, Yale University School of Medicine, Yale Center for XLH

Panel and Presentations

  • Pol Harvengt, Co-author, Belgium
  • Richard Keen, MD, Royal National Orthopedaedic Hospital, NHS Trust, London, UK
  • Peter Kamenický, MD, PhD, Université Paris-Saclay, Paris, France
  • Karl Insogna, MD, Yale University School of Medicine and Yale Center for XLH, Connecticut, USA
  • Oliver Gardiner, Chair, International XLH Alliance, London, UK
  • Tenna Toft Sylvest, Co-Chair, International XLH Alliance, Copenhagen, Denmark

Panel debate

Summary and reflection

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