Our Structure
The delegates form the board of the IXLHA. The Board will aim to come together once a year at our Annual General Meeting (AGM). All delegates can participate at the AGM, but only delegates from Voting Member Organisations have a vote.
The Executive Committee

Chair
Oliver Gardiner
Oliver@xlhalliance.org

Co-Chair
Tenna Toft Sylvest
Tenna@xlhalliance.org

Secretary
Sunindiya Bhalla
Sunindiya@xlhalliance.org

Treasurer
Anna Koltunowska
Anna@xlhalliance.org
Team Coordinators and their Team Members
Other volunteers are helping out on different projects, activities and ad hoc tasks. We have contacts all over the world, including XLH-groups, professionals and partners in the rare disease community.

Communications
Michael Prochaska
Michael@xlhalliance.org
Ainhoa Bisonó-Fernández
Cheri Ohana
Doris Prochaska
Jana Bombosch
Merav Getenew Shina
Sally Hatton

Scientific
Pol Harvengt
Pol@xlhalliance.org
Elizabeth Olear
Manuela Vaccarrotto
Inês Alves

Fundraising
Sunindiya Bhalla
Sunindiya@xlhalliance.org
Inês Alves
Anna Koltunowska
Hristo Hristov

Events
Tenna Toft Sylvest
Tenna@xlhalliance.org
Sally Hatton
Frida Oskarsson
Anu Haverinen
Tia Haverinen
Sandy Bevc