Our mission
By bringing together groups worldwide we amplify the patient voice of X-linked hypophosphatemia (XLH) and related disorders, to set a global multi-disciplinary standard of care and research that could not be achieved independently, to ensure that all patients’ management is the same.


We provide a single global voice for patients with XLH and related disorders.

When you become a member, you will join the only collective fighting x-linked hypophosphatemia and related disorders.

By becoming a member of the International XLH Alliance your charity will get many benefits of joining a group who are all working towards the same goal.

Share your work with other XLH charities.
Receive help in achieving your charity objectives.
Help facilitate research into XLH and related disorders.
Opportunity to take part in research projects.
Be in direct contact with other XLH charities around the world.
Join Us
Contact the International XLH Alliance to enquire about becoming a member. Get In Touch


Contact the International XLH Alliance if you can help us or enquire about becoming a member

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