International XLH AllianceInternational XLH Alliance

WE ARE THE
XLH ALLIANCE

WE ARE AN ALLIANCE OF PATIENT GROUPS FOR INDIVIDUALS AFFECTED BY X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS.

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Our mission
By connecting groups worldwide we amplify the patient voice of X-linked hypophosphatemia (XLH) and related disorders, to set a global multi-disciplinary standard of care and research that could not be achieved independently, to ensure that all patients’ management is the same.

MEMBERSHIP

We provide a single global voice for patients with XLH and related disorders.

When you become a member, you will join the only collective fighting x-linked hypophosphatemia and related disorders.

By becoming a member of the XLH Alliance your charity will get many benefits of joining a group who are all working towards the same goal.

Information
Share your work with other XLH charities.
Support
Receive help in achieving your charity objectives.
Research
Help facilitate research into XLH and related disorders.
Projects
Opportunity to take part in research projects.
Communication
Be in direct contact with other XLH charities around the world.
Join Us
Contact the XLH Alliance to enquire about becoming a member. Get In Touch

MEMBERS

Members of the International XLH Alliance

Click on the organisation name for more information

CONTACT US

Contact the International XLH Alliance if you can help us or enquire about becoming a member

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