This Symposium brought together 148 scientists and clinicians from 31 countries from a wide range of disciplines to gain a better understanding of x-linked hypophosphataemia and offer the latest in research and treatment management.
The scientific programme was designed to present researchers, physicians, and allied health professionals with the newest research, with sessions by world-leading experts.
The Symposium was organised in association with the 10th International Conference on Children’s Bone Health (ICCBH) in Dublin, 2-5 July.
Elizabeth Olear (New Haven, USA)
Session 1: Research Highlights
Session 2: Optimising the Management of XLH
Session 3: Biomechanics & Complications of XLH Beyond Rickets
Session 4: Novel therapy/therapies in XLH
Session 5: Global Health Disparities and Access to Care
Highlights and Key Messages
Full Scientific Programme
Programme Organising Committee
Artemis Doulgeraki (Greece)
Dieter Haffner (Germany)
Elizabeth Olear (USA)
Karl Insogna (USA)
Oliver Gardiner (UK)
Pol Harvengt (Belgium)
Tenna Toft Sylvest (Denmark)
Thomas Carpenter (USA)
The History of the XLH Symposium
Organized by Prof. Agnès Linglart from Hôpital Bicêtre, Prof. Catherine Chaussain from Université Paris Descartes and RVRH, the patient association in France jointly organised the first XLH Symposium held on September 9th 2016 in Paris at the the Imagine Institute. The symposium was attended by more than 130 doctors and researchers from 23 countries.
On September 26th 2018, RVRH organised the 2nd XLH Symposium at the Aigli Zappeion in Athens, Greece. It took place just one day before the 57th annual ESPE meeting. The symposium brought together experts, patients and parents from across the globe to discuss all aspects of XLH; pathophysiology and current research, clinical manifestations, challenging cases and treatment throughout the lifespan.