A side effect of my XLH is my deafness. In the meantime, I wear two cochlear implants (hearing prosthesis) and have learned German Sign Language (DGS). The topic of hearing impairment has given me a lot of experience over the past years. I have met many people and changed my profession. Today I am an audiotherapist and peer counsellor, helping and advocating especially for people with hearing impairment. The connections between XLH and deafness are very important to me and I wish to be seen more here. I hope that the next few years more knowledge and experience on this will be researched and made public.