Annette is 44 years old and lives in Denmark. She was not diagnosed with XLH until adulthood, at the age of 36. She has already had 7 operations XLH as a result of her XLH. Despite the late diagnosis and physical barriers that she had to overcome, in addition to suffering from three strokes in 2017, she has pushed herself to experience life to the full. Annette says: “NEVER give up. Life is always worth fighting for.” Her son fills her with joy and she enjoys her time with him very much. While her daily pain and exhaustion are a challenge, she has learnt that she cannot control everything in life, but she can control how she reacts to these things. Nothing frightens her, she always tries to live in the moment. She comes to relax when she walks in nature, lifts weights, watches films and listens to music.