The Swedish XLH Association, founded in 2003

The purpose of the association is:

  • Creating community for members and providing advice and support. This is done through annual meetings and by telephone / email contact.
  • To support each member so that proper care is provided.
  • To spread knowledge about XLH.
  • To monitor and influence XLH’s interests in society.
  • To contribute to an increase in competence and development, for the treatment of XLH disease.
  • The association is a member of the Riksförbundet rare diagnoses.
  • XLH Swedish Patient Association contributes to the building of a network for rare diagnoses at the University Hospitals.

sweden webpage

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