Joanny is 12 years old and lives in Brazil. She was not diagnosed with XLH until she was 10 years old and has not had any surgeries yet. Her rare disease has taught her that she is beautiful just the way she is. She enjoys spending time with her family and Vanessa Giovanna is her role model because she inspires her a lot. To relax Joanny likes to dance and listen to music. Joanny says: "Everything that happens in our life has a purpose and is planned by God."