Are you an XLH patient or parent of an XLH patient living in India? We are looking to connect patients and their families from across India to share their experiences with the disease and to give support in navigating access to proper medication, doctors, rehabilitation and management of this rare bone disease in adulthood.
If you are interested in helping and connecting with others in India, this is a page to make these connections!

Our Website

Our Facebook Group

Our Email: prakalp[at]

xlh india website

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