The Canadian XLH Network was established in June 2020. The mission of the Canadian XLH Network is to work as a collective to raise awareness surrounding XLH and advocate for patients; to ensure all Canadians have access to the best possible treatment(s); to promote education amongst health care professionals, affected families and the public surrounding XLH; to collaborate with other like-minded organizations and to support affected individuals across Canada, and their families, to ensure they are coping and have a better understanding of the disease.
