We welcome our new member Morocco. Say hello to Association El Amal du Rachitisme Hypophosphatémique!
The association was founded in April, 2017, and participated in the first national day of rare diseases in Morocco at the medical faculty in Casablanca in February 2018. There they had the chance to present their personal experience with XLH (from diagnosis to surgery to present days).
Association El Amal du Rachitisme Hypophosphatémique supports patients with XLH with their experience and information.