International Standards of Care Survey for Adults with XLH

The International XLH Alliance brings together patient organisations from 23 countries who collaborate; share experience and work together to improve patient outcomes globally.
We are conducting a survey among all adults with X-linked hypophosphatemia (XLH) throughout the world.

This survey is conducted to help support the 2021 international XLH awareness campaign that focuses on XLH care, management and treatment. All data will be anonymised and aggregated.

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