Alice is 16 years old and was diagnosed with XLH as a spontaneous mutation when she was 4 years old. She enjoys good medical treatment and has been participating in a clinical trial at the Yale Center in Connecticut since 2015 and has had two surgeries so far in her life. Alice is not a big fan of surgery but remains brave and knows it is necessary. Working and showing her "4-H" cow and lamb brings Alice great joy, she enjoys spending time with her dogs Ruby and Herriot and has great fun with highland dancing, exploring with friends and watching the night sky. Alice has two role models, one is her friend Michaella and the other is @Elizabeth Olear. When Alice is not feeling well, she reads her favourite books, visits the farm when she can, talks to friends or family or goes for a walk. Alice says, "I can’t always keep up with what I want to do, and I’m often slower than my friends, but can usually do a job just as well.