WE ARE AN ALLIANCE OF INTERNATIONAL PATIENT GROUPS FOR INDIVIDUALS AFFECTED BY X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS.
Grab finger paints or fluorescent makeup and paint yourselves. Use colourful LEDs as a light source and illuminate yourselves. Use the built-in photo filter (on Instagram or TikTok) and use the #Rarediseaseday filter to take photos of yourselves.
You have your photo ready to share? Then upload your photo using the button below. All photos uploaded there will be published through our social media channels and online platforms.